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October 14, 2003

Bells Palsy Links

Since telling the story of my Bells Palsy condition (or Bells Paulsy as some have spelt it) I've had a lot of people email me asking questions about the condition. I don't know much from a medical perspective, all I can really share is my own story. Because a lot of people are searching for information on it, I thought I'd post some links that might be of help. Feel free to add your own in comments and I'll add them to the main post. Here is what I've found so far:

Bells Palsy Information Site - This is comprehensive - includes FAQ's, Treatments, Descriptions, Links and Forums.

National Institute of Neurological Disorders and Stroke: Bells Palsy Page

Neurology Channel

A personal Bells Palsy Page

Doctor what is Bells Palsy?

An Interactive Tutorial into Bells Palsy. This one is very interesting - requires Flash.

The Bells Palsy Network: A technical Explanation of Bells Palsy

Kids Health: Bells Palsy Explained

A Bells Palsy Diary: Personal Story

Bells Palsy Information Centre

Bells Palsy Facial Exercises

National Center for Facial Paralysis

Bells Palsy Discussion Forum

Surviving Bell's Palsy: A Patient's Guide to Facial Paralysis Management(Book)

*DISCLAIMER The intent of this post is to provide some general background about Bell's palsy, and to suggest some starting points for further investigation. Whilst care has been taken with the selection of links presented the accuracy of information obtained from these links cannot be guaranteed. I am not and do not pretend to be a medical practitioner and strongly advise readers to consult with a qualified health care provider before taking any action. Readers take full responsibility for any action taken as a result of these links. I hope that they are of some help.

Posted by Darren at October 14, 2003 10:45 PM | TrackBack
Comments

I had Bell's Palsy as a kid. Took nearly a year and lots of physio to clear up. Spent a weekend in the children's hospital for 'observation' - i.e. excuse to take a lot of photos and do tests for an article in a medical journal. I remember all these fellow inpatients - kids - always saying to me: "When you speak, your face goes all crooked." It drove me nuts: "That's why I'm in hospital stupid!"

In fact, for the next year, my parents did not permit me to smile for family photographs as I looked too weird. Difficult to do when your brothers would deliberately clown around to make you laugh. It used to take an hour for my dad to take a photograph, with my mum yelling over his shoulder - don't smile!- and occasionally tweaking my ear. So now we have bunch of photos with my brothers wearing stupid grins and me with one red ear and scowling.

So initially I was a freak and the family joke.
(I am laughing as I write this)

I didn't find out the name of the condition til I was much older and am grateful that it cleared up. Except that I still have a slightly crooked smile and a phobia for being photographed. But at least now when I smile crookedly, people just think I am being cheeky. Which is usually true. ;-)

Thanks for the links.

Posted by: saint in a straitjacket at October 15, 2003 03:30 AM
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